And Insurance Companies Know Best…NOT

After three attempts, my daughter finally had low enough glucose readings to be able to complete the PET scan. The test did not show what we wanted. She still will have to go back for more treatment, even though much progress was made and the size of the areas in question have shrunk a significant amount. I just feel like we are moving up that mountain and never will crest at the top. We are waiting on a new treatment plan from the hematologist and the research study director. Hopefully, we will know soon.

Meanwhile, my daughter’s kidneys are not fairing so well with all of this. She was supposed to have an MRI run this month, but today, we received a letter saying that the insurance company denied it. Truly, the reason for not doing this test was a bunch of mumbo jumbo that the average citizen would not be able to decipher. I suppose the doctor who ordered this test will try and reason with the insurance company. In the meantime, I am more worried about the lymphoma.

Hopefully, we can get some more infusions going and rid the abdomen lymph nodes of what is left. This health crisis started in 2016. It’s almost been ten years of going from one ailment to another created by how the other ailment was treated. My daughter’s reaction when she heard that the lymphoma was still there was “I’m not doing this.” Four days later, she is starting to bend a bit about this. Being on the spectrum, she tends to think in black and white. She feels she had the treatment, so it is gone. It has been a delicate juggling act with me talking to her this weekend about what may have to be done to rid all of the lymphoma.

I pray everyday that she will one day be able to live a semi normal life without thinking about these physical problems. I guess there is only one person who knows for sure what will be in store for her in the future.

Later…